Living conditions of Mixe and Nahua children with disabilities

Main Article Content

Zoila Romualdo-Pérez
Michelle Lapierre-Acevedo
Michelle Lapierre-Acevedo

Abstract

Indigenous children and adolescents with disabilities face multiple forms of structural violence that impact their living conditions. Using an ethnographic methodology, this study recovers the voices, gestures, and experiences of caregivers, and of Indigenous children and adolescents with disabilities, määt jääy (Mixe) and ihtlakahketsih (Nahua), from Oaxaca and the Huasteca Potosina, Mexico. Findings reveal that, in the face of structural precarity, families enact care practices that sustain life. The agency of children and adolescents is highlighted, as they engage in bodily, playful, and territorial practice, such as play, dance, and collective work, to reconfigure the meanings of disability. The
study underscores the urgency of public policies that recognize their voices, value their practices, and strengthen local care networks. Indigenous children and adolescents with disabilities are active participants in the production of knowledge and the transmission of community knowledge.

Downloads

Download data is not yet available.

Article Details

Section

Monográfico “Experiencias y saberes en torno a la discapacidad en América Latina y el Caribe”

Author Biographies

Zoila Romualdo-Pérez, Facultad de Enfermería y Obstetricia, Universidad Nacional Autónoma de México

Mujer Mixe, Ayuujk Jääy, holds a Bachelor's degree in Nursing from the Universidad de la Sierra Sur, Oaxaca. Master's degree in Nursing with a focus on Nursing Care Administration from UNAM, graduated with honors and awarded the Alfonso Caso Medal. Faculty member at the Facultad de Enfermería y Obstetricia-UNAM, incorporated into the Subprogram for the Incorporation of Early Career Academic Staff (SIJA-UNAM). Responsible for the training and care management at the Centro Universitario de Enfermería Comunitaria. Member of the Latin American Council of Social Sciences, working group: Critical Disability Studies. Professional lines of action: Indigenous and native peoples and disability, teaching in community nursing with a focus on primary health care.

Michelle Lapierre-Acevedo, Centro de Investigaciones y Estudios Superiores en Antropología social (CIESAS)-Unidad Golfo

Postdoctoral researcher at the Center for Research and Higher Studies in Social Anthropology – Gulf Unit. PhD in Social Sciences from El Colegio de San Luis. Member of the National System of Researchers of the Secretariat of Humanities, Sciences, Technology, and Innovation (SECIHTI), Level 1. Researcher at the Research Laboratory: Gender, Interculturality, and Human Rights (COLSAN). Member of the Working Group "Critical Disability Studies" of the Latin American Council of Social Sciences (CLACSO).
Research areas: body, childhood, care, and disability in Indigenous communities, and low-prevalence diseases in rural contexts.

Michelle Lapierre-Acevedo, Universidad de la Frontera, Departamento de Ciencias de la Rehabilitación, Temuco Chile

Assistant Professor in the Department of Rehabilitation Sciences at Universidad de La Frontera (Chile). She holds a PhD in Intercultural Studies, a Master's degree in Public Health, and is an Occupational Therapist. She is a researcher at the "Critical Studies on Disability" Working Group of the Latin American Council of Social Sciences (CLACSO), researcher at DISCA Millennium Nucleus, and the Center for Gender Studies at the Catholic University of Temuco. Her research interests include disability from equity, gender, intercultural perspectives, and ableism studies.

How to Cite

Living conditions of Mixe and Nahua children with disabilities. (2025). Revista Latinoamericana De Ciencias Sociales, Niñez Y Juventud , 24(1), 1-27. https://doi.org/10.11600/rlcsnj.24.1.7249

References

Banks, S., & Miller, D. (2005). Empowering indigenous families who have children with disabilities: An innovative outreach model. Disability Studies Quarterly, 25(2). https://doi.org/10.18061/dsq.v25i2.544

Barton, L. (2001). Disability, politics and the struggle for change. Routledge.

Batthyány, K. (Coord.) (2020). Miradas latinoamericanas a los cuidados. Clacso; Siglo XXI.

Butler, J. (2017). Marcos de guerras: las vidas lloradas. Paidós.

Comisión Económica para América Latina y el Caribe. (2021). Introducción a la desigualdad de los pueblos indígenas. Autor. https://igualdad.cepal.org/sites/default/files/2022-02/DB_intro_indigenas_es.pdf#page=3.75

Comisión Nacional de los Derechos Humanos. (2020). La convención sobre los derechos de las personas con discapacidad y su protocolo facultativo. Autor. https://bit.ly/4saq2SH

D’Aprano, A., McRae, K., Dayton, S., Lloyd-Johnsen, C., & Gilroy, J. (2024). A scoping review of early childhood support for Aboriginal and Torres Strait Islander children living with a disability in regional, rural and remote settings. Australian Journal of Rural Health, 32(5), 890-905. https://doi.org/10.1111/ajr.13164

Del Popolo, F. (2017). Los pueblos indígenas en América (Abya Yala). Comisión Económica para América Latina y el Caribe. https://hdl.handle.net/11362/43187

Diario Oficial de la Federación. (2014). Reglamento de la Ley General de Salud en materia de investigación para la salud. Autor.

Erevelles, N., & Minear, A. (2010). Unspeakable offenses: Untangling race and disability in discourses of intersectionality. Journal of Literary & Cultural Disability Studies, 4(2), 127-145. https://doi.org/10.3828/jlcds.2010.11

Eversole, R., McNeish, J.-A. & Cimadamore, A. (Eds.) (2005). Indigenous peoples and poverty: An international perspective. Zed Books.

Farmer, P. (2009). On suffering and structural violence: A view from below. Race/Ethnicity, 3(1), 11-29.

Fondo de las Naciones Unidas para la Infancia. (2006). Convención sobre los derechos del niño. Autor. https://www.un.org/es/events/childrenday/pdf/derechos.pdf

Fondo de las Naciones Unidas para la Infancia. (2014). Mapeo de niños y niñas con discapacidad fuera de la escuela. Cuadernillo 5. Autor. https://bit.ly/4aM6c9P

Fondo de las Naciones Unidas para la Infancia. (2023). Protección social inclusiva para la niñez con discapacidad en Latinoamérica y el Caribe: marco regional. Unicef; Diálogo Interamericano. https://www.unicef.org/lac/informes/proteccion-social-inclusiva-parala-ninez-con-discapacidad-en-latinoamerica-y-el-caribe

Fontes, C. (2014). Discapacidades en niños y jóvenes tapietes y guaraníes: análisis de las prácticas y saberes comunitarios. Revista Argentina de Salud Pública, 5(19), 26-32.

Gaitán, L. (2006). Sociología de la infancia. Síntesis.

García, M. (2018). Infancias indígenas y conocimiento comunitario: un análisis etnográfico. Abya-Yala

González, P. (2003). Colonialismo interno (una redefinición). Universidad Nacional Autónoma de México.

Graneheim, U., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24(2), 105-112. https://doi.org/10.1016/j.nedt.2003.10.001

Grech, S. (2009). Disability, poverty and development: Critical reflections on the majority world debate. Disability & Society, 24(6), 771-784. https://doi.org/cxzrfw

Inguanzo, I. (2017). The situation of indigenous children with disabilities. European Parliament’s Subcommittee on Human Rights. https://www.europarl.europa.eu/RegData/etudes/STUD/2017/603837/EXPO_STU(2017)603837_EN.pdf

James, A., & Prout, A. (Eds.) (2015). Constructing and reconstructing childhood: Contemporary issues in the sociological study of childhood. Routledge. https://doi.org/gn9hjk

Jiménez, J. (2022). La invisibilización de los indígenas con discapacidad en la comunidad de Santa María Tlahuitoltepec Mixe, Oaxaca. [Tesis de maestría, Universidad Autónoma Metropolitana]. Xook. https://repositorio.xoc.uam.mx/jspui/handle/123456789/27176

Keenan, N., Aitchison, S., Jetté, N., Parko, K., Roach, P., Santos, A., Archer, J., Andersen, E., Stairmand, J., Stanley, J., & Sadleir, L. (2025). Epilepsy in the indigenous peoples in Canada, Australia, New Zealand, and the USA: A systematic scoping review. The Lancet Global Health, 13(4). https://doi.org/10.1016/S2214-109X(24)00507-2

Kempf, I. (2001). Pobreza y pueblos indígenas: más allá de las necesidades. Centro de Investi-gación para la Paz; Fundación Hogar del Empleado. https://www.fuhem.es/wp-content/uploads/2019/08/KEMPF-Isabell-Pobreza-y-pueblos-indigenas.pdf

Similar Articles

You may also start an advanced similarity search for this article.